What is Advanced Care Planning?

An essential part of anyone’s life is considering how we want our future to look. We all need to do this occasionally at different stages of our lives, even if the conversation makes us feel a little uncomfortable. Talking about our future in terms of end-of-life care is one of those topics that most of us would prefer to avoid. However, with the proper support and a sensitive approach, we can consider this topic in a way that is both respectful and pragmatic.

Advance Care Planning (ACP) empowers individuals to decide what kind of medical care they want and what should happen when they can’t make decisions for themselves. By documenting their wishes, individuals can ensure that their decisions are respected by loved ones and healthcare providers, providing peace of mind for all involved.

ACP is not solely for the elderly; it is a valuable tool for individuals of all ages who wish to exercise autonomy and control over their healthcare decisions. In the event you are unable to make your own decisions, advanced care planning allows you to make the choices and decisions now about your future medical and healthcare needs and decide what treatment you may like (or not like) to receive.

Why Advanced Care Planning is important

Advanced care planning is usually formalised via an Advance Care Directive (ACD). By creating an ACD, you’re taking an active role in your healthcare. This document empowers you to express your preferences for future medical treatment and end-of-life care. It’s like leaving a roadmap for your loved ones and healthcare providers to follow, ensuring that your wishes are respected even when you can’t communicate them yourself.

Formalising your wishes through advanced care planning can provide significant emotional and practical benefits for both you and your loved ones.

• Reduced Stress and Anxiety: Knowing that your wishes are clearly documented can alleviate the burden on your loved ones during difficult times.
• Empowerment and Autonomy: Creating an ACD gives you a sense of control and allows you to maintain your autonomy even when you’re unable to make decisions for yourself.
  
• Avoidance of Unwanted Treatments: An ACD can help prevent unnecessary or unwanted medical interventions, ensuring that your care aligns with your values and preferences.
  

Studies have shown that individuals who have completed an ACD often report higher levels of satisfaction with their end-of-life care. Additionally, families of those who have an ACD often express gratitude for the clarity and peace of mind it provides during challenging times.

Advance Care Planning and Advance Care Directives are governed by state and territory legislation.

Overview of Advanced Care directives and legal considerations

An Advance Care Directive (ACD) is a legal document that allows you to express your wishes regarding future medical treatment and end-of-life care. It typically includes your preferences for life-sustaining treatments, such as artificial ventilation and feeding tubes, as well as your choice of medical power of attorney. The specific components and legal requirements for ACDs can vary depending on your location.

It’s important to understand the legal framework governing ACP in your jurisdiction. This includes knowing the requirements for capacity assessment, informed consent, and substitute decision-making. A healthcare proxy, appointed by you, can act on your behalf if you are unable to make decisions. While ACDs are generally legally enforceable, it’s essential to consult with legal professionals to ensure that your document is valid and comprehensive.

How HomeMade can help?

We will discuss Advance Care Planning with you and your representative (if you have one) to ensure you have every opportunity to have your critical care or end-of-life wishes written down in advance. Then, in a crisis situation, it will be easier for those around you to ensure your wishes are put into place.

Once you have thought things through and made your decisions known to others, you can get on with the more enjoyable aspects of living a full and rewarding life.

Next steps and resources

Because Advance Care Planning and Advance Care Directives are governed by state and territory legislation it’s important to seek information relating to your state.

To get started with Advance Care Planning, consider the following steps:

• Consult with your GP: Discuss your interest in ACP and seek their guidance on the process.
• Seek legal advice: Consult with an attorney who specialises in elder law or estate planning to ensure your ACD is legally valid and comprehensive.
• Access relevant resources: Explore online resources, such as government websites and community organisations, for information specific to your state or territory. Below are various resources for you to review and to find out more.

Talking about ACP can be challenging, but it’s essential to have open and honest conversations with your loved ones and healthcare providers. Here are some tips to get started:

• Choose a comfortable setting: Find a time and place where you feel relaxed and can talk openly.
• Be clear about your goals: Explain why you want to create an ACD and what you hope to achieve.
• Involve your loved ones: Invite your family members or caregivers to participate in the conversation.
• Use resources: Consider using tools or worksheets to help guide the discussion. 

Remember, ACP is a personal journey, and there’s no one-size-fits-all approach. By taking these steps and seeking support, you can ensure that your wishes are documented and respected.

Recording and accessing Advance Care directives

There are several ways to document and share your Advance Care Directive (ACD):

• My Health Record: You can securely store your ACD within your My Health Record, ensuring that any treating doctor has access to your documented wishes. You can find out more here on the Digital Health website.
• Paper-based format: Create a physical copy of your ACD and provide copies to your family members, healthcare providers, and legal representatives.

Steps for documenting and sharing

1. Choose a format: Decide whether you prefer a digital or paper-based ACD.
2. Complete the document: Fill out the ACD form, ensuring that your wishes are clearly expressed.
3. Share with relevant parties: Provide copies of your ACD to your family members, healthcare providers, and legal representatives.
4. Update as needed: Review and update your ACD regularly to reflect any changes in your preferences.

Whether you choose a digital or paper-based format, your ACD should be easily accessible and portable. If you store your ACD digitally, ensure that it’s backed up and easily retrievable. Consider carrying a physical copy of your ACD with you or storing it in a secure location.

Your ACD will be treated with the same level of confidentiality as other medical records. Rest assured that your personal information will be protected in accordance with privacy laws.

Addressing common concerns and misconceptions

Many people have concerns about Advance Care Planning (ACP). Some worry that they’ll lose control or that their wishes won’t be followed. Others are unsure about how to make decisions about future medical care.

It’s important to remember that ACP is about empowering you to make your own choices. It doesn’t mean you’re giving up control. In fact, it’s the opposite. By planning ahead, you’re ensuring that your wishes are known and respected.

Research shows that people who have an ACP often feel more satisfied with their end-of-life care. They also report feeling less stressed and anxious, knowing that their loved ones have a clear understanding of their wishes.

If you’re hesitant about ACP, start by talking to your doctor. They can help you understand the process and address any concerns you may have. You can also talk to your loved ones and see if they’re interested in learning more about ACP together.

Remember, ACP is a personal journey, and there’s no right or wrong way to do it. The most important thing is to make sure your wishes are known and respected.

Advance Care Planning (ACP) empowers individuals to take control of their healthcare decisions and ensure that their wishes are respected. By documenting your preferences for future medical treatment and end-of-life care, you can promote autonomy, peace of mind, and compassionate care for yourself and your loved ones. Don’t delay. Take the proactive step of creating an Advance Care Directive today and ensure that your voice is heard, even when you can’t speak for yourself.

Learn more

1. Advanced Care Planning provides a range of resources to help you, your family members and / or carers.

2. The Department of Health and Aged Care also has more information on their website.